It was this diagnosis that made me suffer from stages of grief. You start out as one person and end up as a completely different person on the other side, and a lot of the things that you used to be able to do are taken away when you suddenly have these new limitations.
I was diagnosed at 34, lived with him for 15 years – and now I’m living the best of my life. But if I looked at Toni who was diagnosed in 2007, I wouldn’t have thought I’d be here now, especially with his neuropsychiatric lupus.
I experienced hallucinations and delirium, and my mom came out to be my caregiver. She later told me that one day when we were driving to go to the leak, I jumped out of the car at a stop sign and tried to strip down in the middle of the intersection. I don’t remember it, but there were a lot of different effects lupus had on me.
I also have Post Traumatic Stress Disorder Of my service, but lupus caused this to happen Severe depression. I’ve made four suicide attempts, all around lupus because I felt like a lot of things were taken away from me: my marriage, my career, and almost my life (with my kidney disease). People don’t realize the mental damage it causes not only to a lupus patient, but also to their family members and friends. Because it is a chronic disease, there are good days and bad days.
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